Isotretinoin (Roaccutane) Skin History and the Beginning of My Journey
This is a topic that it is not easy to write about. Many people suffer from acne, and yet it is such a taboo topic, surrounded by beauty myths and all sorts of presumptions. Acne is very often catalogued today as a disease and can severely impact self-confidence and everyday life.
I have been suffering from acne for twelve years, time in which I received lots of unsolicited advice about my diet, skincare routine, makeup, sexual life etc. After such a long time having this skin condition, I decided to take Isotretinoin, mostly known as Roaccutane (UK) or Accutane (USA), which is a strong and controversial oral treatment for severe acne. The medicine comes with an endless list of side effects and presumptions, and it is negatively perceived by most people.
Given these horror stories that fill the internet about Isotretinoin, I decided to document and track my journey and publish it so that everyone curious about it can read about my experience.
I am not a doctor or a pharmacist, and I am not going to write about my journey from a medical point of view. My journey will be tracked from the perspective of a patient, which will make my decisions, my experience and my results subjective, personal and for informational purposes only.
Isotretinoin is a serious drug, with severe side effects, and my decision to write about it did not come lightly. However, as doctors have told me many times, a very large number of people are taking the treatment or are considering it. It is very hard to make the decision if to take it or not because many people believe it is not necessary, as it treats a non-life-threating skin condition. My decision if to accept the treatment or not was influenced by many online testimonials, vlogs, online interviews with doctors and patients. I want to write about my journey taking Isotretinoin so other people considering it can read about my experience, find additional details and be more informed about how it will affect their everyday life. Besides this, I want to also help people that already made the decision to take it, telling them more details about skincare routines and by sharing our experiences.
Isotretinoin is only prescribed by dermatologists. Please consult qualified specialists in order to understand why it is crucial that you only take it under professional supervision.
During my Isotretinoin treatment, I will discuss my skin history (see below), factors to take into consideration when making your decision, the process of getting Isotretinoin prescribed in the UK, how I optimise the treatment to suit me best, as well as a monthly diary with my progress and side effects I have experienced.
The first signs of acne appeared around the age of twelve, when my skin became oily, and my hair started to fill with sebum, even shortly after I washed it. Slowly but surely, my face got filled with acne. With time, I used so many acne products, from La Roche Posay, Vichy to Zynerit, none of it working.
At fourteen I started wearing makeup and I never went out in public without foundation or concealer on. My skin was filled with pimples and redness, as well as very dilated pores, texture, scars and flaky skin. To clear up the myths about diet, I need to mention that I have also been a vegetarian for three years, time in which my skin didn’t improve at all.
At nineteen I was prescribed the combined pill, which made my skin even worse. After about one year in, my skin cleared up. On my face, chest and back, I barely had any new pimples. During this period, I stopped using any acne-fighting products, focusing on moisturising creams and oils. However, after a while, the acne came back as bad as it had before, if not even worse. I experienced many side effects with the combined pill, so I had to swap to the mini-pill.
After I turned twenty-one, my skin was at its worst. It was filled with painful cystic acne, as well as white heads, blackheads, scars, flakiness, dialled pores, deep scars, red scars, as well as more superficial pimples, all over my face, shoulders, neck, chest, upper back and lower back. By that point I had tried pretty much every acne-fighting ingredient in topical products with different concentrations and formulae: Azelaic Acid, Niacinamide, Zinc, Lactic Acid, Retinoids, Adapalene, Benzoyl Peroxide, Alpha Hydroxy Acids, Sulfur, tea tree oil, Tretinoin etc. I tried skin vitamins as well. I also took Doxycycline 100mg/day for four months. My skin cleared up perfectly during this time, only the scars remaining. However, a few weeks after finishing the treatment my skin got just as bad as before. Again, to clear up diet myths, I need to mention I found out I am lactose intolerant, so I stopped eating any diary products for years… nothing changed with my skin.
At twenty-two I went to see my GP (general practitioner) in the UK which prescribed me Minocycline for one month. At the follow up appointment after one month I had another doctor on duty who panicked about the fact I have been prescribed Minocycline as it is known to cause kidney damage. Instead, he prescribed me Lymecycline for six months, 100mg/day. My skin definitely cleared up, but not as well as with the Doxycycline. Occasionally, I was still attacked by huge painful pimples on my face that left such deep scars I have them even today. That GP also made a referral to a dermatologist and suggested Isotretinoin (Roaccutane). This was in May 2016. My Lymecycline treatment finished in December 2017. I finally received my appointment to the Dermatology in autumn 2017. The doctor suggested Isotretinoin. I refused it based on its potential side effects on the mental health, as I was living in a foreign country and just starting my final year of University.
After six months, I went in for a follow-up dermatologist appointment to discuss if I have changed my mind. The new doctor was fantastic and explained to me that Isotretinoin gets a very bad reputation, but it is hard to divide its side effects from those of the contraceptive pill. Since women must take the contraceptive pill during their treatment with Isotretinoin, no one can tell for sure what is caused by which. Similarly, the mental health side effects could have been there regardless of the treatment as acne is a disease that causes serious effects on the individual, including anxiety and depression. As it is very possible that at the beginning of the treatment your acne will flare up, it is possible that some patients experience low moods because of the state their skin is in. The doctor said she does not think anything else will work on my acne other than Isotretinoin, which, of course, could not cure my acne either, but that there was a strong chance it will stop flaring it up.
I needed more time to think, I studied the leaflet, looked at many experiences online with the drug and so in September 2018 I returned to the dermatologist and agreed upon the treatment. I was able to start right away as I have been discussing with them about Isotretinoin for a year and I was already on the pill. At that point my skin was in a pretty good state as I went to a cosmetologist for two months, time in which I spent a lot of money and effort to clear up my skin. The cosmetologist used lactic acid, vitamin C, niacinamide, massages that would help the circulation in my skin, masks, facials, as well as other tricks that were never revealed to me (she was very attentive in hiding her secrets). While my acne on my face was finally dying away, the acne on my chest, shoulders and back was never angrier and more irritated. Together with the dermatologist I decided that we need to stop the active pimples appearing from causing more scars, and so Isotretinoin was the best shot I had.
To be continued…
To see a list of all articles published so far about Roaccutane, click here.
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Very interesting post. I am sure you had lots of unsolicited advice over the years. I am glad you have something that works for you x
I am glad you found it interesting. Yes, a lot of people felt the need to give me advice, even though they never struggled with acne. The supposition that acne equals bad hygiene is the worst.
Sounds like you have been on quite a journey with you skincare!
Thank you for sharing your story! Acne is something that a lot of people have trouble with and feel ashamed of. I really think that this post will help a lot of young girls.
Unfortunately it is not just young people that struggle with acne, adult acne can be one of the most persisting forms of acne. Thank you for reading the article!
as i was reading the article i could imagine the long fight that u have had with acne. you definitely area fighter
Thank you for your kind words! It has been tough.
Thank you for bringing awareness and sharing your story that can inspire so many others. Great video! ✨
Life Mag Health
This is a very interesting and informative post! I’ve never known a lot about Isotretinoin, that in some cases, it should be taken with contraceptive pill. Great information, thank you for sharing!
Thanks for sharing this informative piece.
Explore with Jeph
I faced the same problem before. I suffered from severe acne when I was 23. It started when I moved here in Qatar. Im not really sure where did I get it from. I suspected it was caused by eating chicken. No other option actually here aside from chicken, beef and seafoods as pork is forbidden. I tried different kind of products and anti-biotics. Some burnt my skin and made it very dark. Until one day I gave up and felt hopeless. I stopped using those products and just used a gentle facial wash. I applied bio-oil every evening before going to sleep. I noticed my pimples started to go away and the bio-oil helps to lighten the scars. But it took a long process until those pimples totally gone away. I hope through Isotretinoin, your problem with pimples will be gone permanently. Have you heard about spectra laser treatment? They said it is also effective for acne treatment
I am glad to hear you got rid of your acne! A significant change of climate can also generate issues for our skin. I truly tried everything else before taking Isotretinoin.
Thank you for sharing your journey. I’m sure many people will benefit from your telling it. Thank you!
I hope so! Thank you for reading!
Thank you for this information on a skin journey! We all need to take better care of our skin!
We really do, but for many it feels like a loosing battle!
I just took my son into the dermatologist to discuss Accutane. We are currently undecided…Great post, excited to read the rest!!
I have quite a few articles about Roaccutane on this blog. You can find them all here: https://lipstick.cafe/?s=roaccutane I discuss about getting it prescribed, what it means, how to counteract side effects, tips and tricks, as well as simply documenting my journey with monthly diaries. I still have to post a few, as they are all written but I am trying to space them out in time, so the content on this blog does not become too flooded with Roaccutane related content! Feel free to ask me anything about my treatment if you think it would help your son.
Great post! I did not know about these products, thanks for sharing.
With so many medicines on the market, it’s hard to keep track of which are good and which aren’t. 🙁
In terms of acne it is relatively easy to say what works and what doesn’t, as the issues are quite visible! If used correctly for a few months, they should show results. If they don’t, it means whatever you are using is ineffective.
Informative article. A great read for me with valuable insights.
I’m glad you finally found something that worked on your face,chest, back and shoulders.
It is still hard to believe sometimes.
I have not heard of Isotretinoin before, but it is very brave of you to share your story to help others.
I’m not really into these things but I will refer this blog post to my sister and girlfriend. I’m sure they will love reading this. 🙂
That would be wonderful, thank you so much!
Wow this was really helpful. I’ve tried a lot of the same things you have and I’ve had no success.
I am sorry to hear that. What are you currently using? I hope the range of articles I have on skincare will help!
Never heard of it but It’s a really interesting post to read. Thanks for sharing.
I think people that never hear of Isotretinoin are lucky… because it means they didn’t battle acne! Thank you for reading my article!
That sounds great! The result is really worth it. This will help many for sure!
I really do hope so, thank you, Elizabeth!